I finally reached a point where I couldn’t ignore my body anymore. The strange spells, the overwhelming fatigue, the moments where my brain felt like it was misfiring—I was done brushing it off. Done pretending I was okay.

So, I made the appointment.

This time, it wasn’t just any doctor—I had been referred to a neurologist. That felt serious, like maybe we were finally getting somewhere. I showed up hopeful, nervous, and desperate for answers. I told her everything:

The dizziness

The overwhelming fatigue

The "locked-in" spells where I couldn’t move or speak

The brain fog

The bizarre moments, like putting the ketchup in the cabinet and having no memory of it

She listened and said it could be a vitamin B12 deficiency. I told her my primary doctor had already tested my levels and said everything looked fine. But the neurologist believed something may have been missed and ordered a full workup—MRIs of my entire body, bloodwork, and even tests for brain seizures.

After all that, the only outcome was a prescription for B12 injections—no questions about my diet, my ability to absorb nutrients, or anything deeper. Just four weeks of injections… then another two.

I didn’t feel better.
Actually, I felt worse.

The crashes continued. The spells didn’t stop. I got sick constantly—random fevers, migraines, and exhaustion that made it hard to get out of bed. My weight dropped dramatically. I was down to 82 pounds. My face looked sunken in—I looked sick, and I felt it.

Then came a turning point.
I found a primary care doctor who truly listened. She tracked my weight, checked in regularly, and eventually said something that scared me:
"I don’t know what else to do—but you cannot keep losing weight."

I told her I was eating constantly, tracking every calorie. But my body wasn’t responding—it was like it wasn’t absorbing anything. I suggested we check in with a hematologist, and she agreed.

That hematologist gave me knowledge and hope.

She explained that not all B12 issues show up on standard blood tests, and that the amount of B12 your body needs can vary widely between people. Some of us need more frequent or higher doses, and the only way to figure it out is to experiment.

So we did.

With my primary doctor’s support, we adjusted the frequency of the B12 injections—and I started feeling a little better. But I wasn’t well. Not fully.

Then came another clue.
At 28, I began having blood pressure spikes. I was prescribed medication, but nothing stabilized it. By 2021, my blood pressure stayed high—even on two medications. I began experiencing heart palpitations and had an EKG that looked borderline concerning.

I saw a cardiologist, went through all the tests—including a procedure to check for clogged arteries. The results?

Zero percent blockage.
I was perfectly healthy—on paper.

And yet, I continued to struggle. I was eating healthy, exercising, doing everything I was "supposed" to do. But my hair was falling out in chunks. I remember looking in the mirror and feeling sick to my stomach. It wasn’t just the hair—it was the frustration of knowing something was deeply wrong and still not having the full answer.

That’s when I met a doctor who changed everything.
I mentioned a genetic test I’d done in the past that hinted at a possible mutation. She listened and said,
"Let’s test you for the MTHFR mutation."

When the results came in, she called and said:
"We figured it out. You have two mutations on the MTHFR gene."

Here are some facts:

Having two copies of a mutated MTHFR gene means you are homozygous for that mutation. This can lead to a reduction in the activity of the MTHFR enzyme, which is involved in processing the amino acid homocysteine. While not everyone with two mutated copies experiences significant health problems, some may have slightly elevated homocysteine levels, potentially increasing the risk of certain conditions. 

Medical Conditions:

Some studies have also linked MTHFR mutations to an increased risk of vascular disease, high blood pressure, blood clots, and certain types of cancer. 

She explained it like this:

Most people convert folic acid (the synthetic form of folate found in vitamins and fortified foods) into its active form using an enzyme called MTHFR.

But with this mutation, my ability to do that is severely reduced.

Folic acid can build up in the body unmetabolized, potentially worsening symptoms and contributing to issues like fatigue, mood swings, or clotting.

Instead, my body needed methylated folate (L-methylfolate)—the active, bioavailable form that doesn’t require conversion.

And instead of standard B12 or injections, I should be on Methylcobalamin (Methyl B12)—the active form of B12 that’s easier for my body to use.

She also said that dizziness could be related to poor blood flow or clotting, so I could take a baby aspirin if I ever felt those symptoms coming on—just as a precaution.

This changed everything.
For the first time in years, I finally had a real answer. Not a guess, not a band-aid, but a deeper understanding of what was happening inside my body. This new diagnosis, this insight into the MTHFR mutation, was the beginning of everything finally making sense.

✨ To be continued…
Next time, I’ll share how switching to Methylfolate and MethylB12 finally started changing my life—and what it really means to heal when the world keeps telling you nothing’s wrong.

P.S. If you’ve ever felt dismissed, unseen, or told “your labs look fine” when your body is screaming otherwise—please know you’re not alone.

I’ve created a list of the wellness products that have truly changed my life—natural, gentle, and effective tools that helped me feel human again, without the awful side effects that prescription meds often brought.
👉 [Check out my wellness picks here] – I hope they help bring you relief, hope, and healing too. 💛